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cookie policy accept and close... contact us young people young people information for young people about 'transition: understanding it and making it work'. back to homepage why was this research carried out? who was involved? what did we do? what did we find out? transition benchmarks resources why was this research carried out? as young people get older, children's services and units become less suitable and most young people move on from children's services to adult services. this project is looking at how young people with long term health conditions are ' transitioned ' to a new service. what is transition? the word ' transition ' is used to describe the process of planning and moving on from children’s services. the way transition happens and when it happens is different in different hospital and services. in this study we wanted to find out more about transition from the point of view of young people, parents and health professionals. we wanted to know what works well, what does not work well and what could be done to improve services for young people. who was involved? four hospital trusts in london were involved in the study: university college london hospitals, great ormond street hospital, chelsea and westminster hospital and guys and st thomas' hospitals. we invited young people aged between 13 and 21 years old with a long-term health condition to take part. young people who went the hospitals mentionned above were given information about the study by the health professionals they saw and we also asked some health charities to put information about the study on their websites inviting young people to get in touch with the study team if they were interested in taking part. 13 young people and 11 parents took part. some young people had already moved to adult services and some were still receiving child services. we also spoke to 21 experts from across the uk, leading on transition from child to adult care and 36 health professionals who worked at the hospitals involved in the study. what did we do? workshops, focus groups and interviews were held with the young people, parents and professionals who took part. we asked the people who took part about their experiences of transition and how they thought transition could be improved. we also carried out a review of the literature, to see what had been written about transition. our aim was to use the information we had gathered to develop a set of benchmarks for transition (a benchmark is a standard that services can measure themselves against to see how they are doing, where they can improve and can help services to share best practice/care). the researchers analysed the information gathered and pulled out a list of factors that were mentioned as being important when young people move to adult care, along with some examples of best care/practice in each area. the researchers worked with a group of young people and parents to select which factors should be included in the benchmarks and the examples of good care. the benchmarks were sent out to the professionals, parents and young people involved in the study for comment and were refined based on the feedback recieved. the benchmarks were sent out a final time for further comments. what did we find out? what did young people say? young people told us what was important to them regarding transition. young people said, ‘preparation is key’ ; they wanted early information about transition, help to gradually take over the management of their health condition from their parents and recognition that everyone is different. young people wanted to be treated ‘like a teenager’ – not a child, not an adult, this involved: having letters addressed to them, professionals speaking directly to them, explaining things in a way they could understand and being listened to. the young people spoke a lot about the skills and knowledge they wanted to be helped to develop in preparation for moving to adult care. they wanted a chance to gradually practice skills such as talking to doctors without a parent there whilst still in children’s services with familiar health professionals. what did parents say? parents raised concerns about their son/daughter moving on to adult services. their main worries were about the, ‘unknown’, not knowing who will care for their son/daughter, what the care will be like and how their son/daughter will cope with taking on more responsibility for their own health. like young people, parents said what would help them was good communication and information about transition and having a clear plan. what did the experts and professionals say? the experts spoke about how, ‘ things have become stuck’ and how changes need to be made in order to improve transition. these changes included ‘changing the mind-set’ of professionals through training about adolescence and the needs of young people, more ‘joined-up thinking’ across child and adult services and breaking down barriers hospital have such as a fixed age young people are moved to adult care. the professionals discussed the barriers to putting in place transition services but also about how some of these had been overcome. examples of initiatives to improve transition were shared such as: holding transition days for families, joint clinics with the child and adult teams and development of documentation for transition. it was evident that there was little sharing of these strategies as professionals working within the same hospitals were not aware of what colleagues from different specialities had put in place. benchmarks for transition using the information we gathered we worked with young people, parents and professionals to develop the benchmarks for transition. for young people and their parents to experience timely and effective transition eight factors were developed from the data: 1) moving to manage a health condition as an adult, 2) support for gradual transition, 3) co-ordinated child and adult teams, 4) services ‘young people friendly, 5) written documentation, 6) parents, 7) assessment of ‘readiness’ and 8) involvement of the gp. under each factor is a list of things that would show good practice in that area. for example, some indicators for factor 1 are: a) ensure the young person understands their health condition (including information about their treatment when they were younger and how it may affect them now and in the future) b) the young person is helped to make decisions about the management of their condition and health at a pace appropriate to their needs. if you would like a copy of the benchmarks please contact the research team using the details on the 'contact us' page. resources for young people below is a selection of links about health and transition you may find useful. information about transition: preparing for adult health services http://www.gosh.nhs.uk/teenagers/leaving-hospital/preparing-for-adult-health-services/ information about transition from great ormond street hospital. transition: moving into adult care http://www.uhs.nhs.uk/ourservices/childhealth/transitiontoadultcarereadysteadygo/transitiontoadultcare.aspx information about transition by university hospital southampton nhs foundation trust. 'from the pond into the sea' http://www.cqc.org.uk/content/teenagers-complex-health-needs-lack-support-they-approach-adulthood review of transition for young people from the care quality commission 2014. research study on transition http://research.ncl.ac.uk/transition/index.html northumbria healthcare nhs foundation trust and newcastle university have developed a research programme that aims to answer this question - ‘how can health services contribute most effectively to facilitating successful transition of young people with complex health needs from childhood to adulthood?’. this site gives more information on their work. stepping up website http://steppingup.ie irish website providing information about transition for young people, including films of young

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http://www.transitionstudy.co.uk/#!/professionals/resources
http://www.transitionstudy.co.uk/#!/young-people/transition-benchmarks
http://www.transitionstudy.co.uk/cookie-legal-policy
http://www.transitionstudy.co.uk/#!/contact-us
http://www.transitionstudy.co.uk/#!/professionals/findings-2
http://www.transitionstudy.co.uk/#!/parents/resources
http://www.transitionstudy.co.uk/#!/young-people/what-did-we-do
http://www.transitionstudy.co.uk/#!/professionals/benchmarks-for-transition
http://www.transitionstudy.co.uk/#!/young-people/what-did-we-find-out
http://www.transitionstudy.co.uk/#!/young-people/why-is-this-research-carried-out
http://www.transitionstudy.co.uk/#!/
http://www.transitionstudy.co.uk/#!/parents/our-findings
http://www.transitionstudy.co.uk/#!/young-people/who-was-involved
http://www.transitionstudy.co.uk/#!/professionals/aims-and-purpose-of-the-study
http://www.transitionstudy.co.uk/#!/professionals/background-to-the-study
webarchive.nationalarchives.gov.uk
talklab.org.uk
togetherforshortlives.org.uk
workingfamilies.org.uk
research.ncl.ac.uk
hml.lsbu.ac.uk
nice.org.uk
chimat.org.uk
talklab.nhs.uk
dh.gov.uk

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Domain name:
transitionstudy.co.uk

Registrant:
Dept. Children's Nursing, LSBU

Registrant type:
Other UK Entity (e.g. clubs, associations, many universities)

Registrant's address:
103 Borough Road
London
SE1 0AA
United Kingdom

Data validation:
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Registrar:
123-Reg Limited t/a 123-reg [Tag = 123-REG]
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Relevant dates:
Registered on: 14-Feb-2013
Expiry date: 14-Feb-2020
Last updated: 23-Jan-2017

Registration status:
Registered until expiry date.

Name servers:
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ns2.123-reg.co.uk 62.138.132.21

WHOIS lookup made at 08:14:03 18-Mar-2018

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  PORT 43

  TYPE domain

OWNER

  ORGANIZATION Dept. Children's Nursing, LSBU

TYPE
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ADDRESS
103 Borough Road
London
SE1 0AA
United Kingdom
Data validation:
Nominet was not able to match the registrant's name and/or address against a 3rd party source on 16-Oct-2017

DOMAIN

  SPONSOR 123-Reg Limited t/a 123-reg [Tag = 123-REG]

  CREATED 2013-02-14

  CHANGED 2017-01-23

STATUS
Registered until expiry date.

NSERVER

  NS.123-REG.CO.UK 212.67.202.2

  NS2.123-REG.CO.UK 62.138.132.21

  NAME transitionstudy.co.uk

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